Tag Archives: RAPTOR clinical trial

Crushed?

Day 3 of an ongoing pictorial theme! Nah, only joking. I do still feel completely bewildered – and quite exhausted by the events of the past few days – but my spirits are picking up. The brief consultation with Professor … Continue reading

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Above the grass

Not long after my last post I went through a bit of a slump. I felt tired, a bit yucky, just pretty weary. The weather mirrored my mood, grey and dank, and I developed an unnatural fondness for my quilt. … Continue reading

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Operational

The most recent regular fortnightly trip to see Professor Hawkins at The Christie in Manchester, as part of the RAPTOR clinical trial for everolimus (‘Afinitor’) as a first line treatment for papillary rcc, was relatively straightforward. Since December we’ve been … Continue reading

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Surprise! Surprise!

Things have been hectic of late so I haven’t had time to post so I am going to try to quickly rattle through an update of my experience with papillary rcc over the past few weeks. We had a lovely … Continue reading

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Tramadol Nights

…and tramadol mornings and tramadol afternoons! It’s time to say hello to the opoids. I’ve been experiencing very uncomfortable levels of pain over the past few weeks and after much dithering and deliberating the counsellor I’ve been seeing at the … Continue reading

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Pill popping

I now have a £100 a day drug habit. Fortunately I don’t have to mug pensioners to sustain it. On Tuesday I had confirmation that I was accepted on the everolimus trial. When I heard the news I danced around the … Continue reading

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Hope Springs

Whew! The much dreaded mammoth day of tests is over. I left home at 5am (after waking stupidly early at 3am), savored the space, peace and free hot water (for my ginger tea) of First Class on the train to … Continue reading

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Hello to ‘The Christie’

I have been really moved by the comments and messages of support some of you have been posting on the site. To date I haven’t published these simply because a lot of the content has been quite private and some of you … Continue reading

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Everolimus hopes

For the first time ever I almost had a panic attack. Having been reasonably calm for the past year my body betrayed me as we drew up to the Edinburgh Cancer Centre at the Western General hospital, and I was … Continue reading

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